Benefit Conert For Leah

/tres/images/photos/1/1/1/0/111022/l.HgxodActciVkwMRC.jpg/tres/images/photos/1/1/1/0/111022/l.HgxodActciVkwMRC.jpg
Voices of Hope Choir
Saturday, June 6th, 6:30pm
http://www.voicesofhopechoir.org/

Creekside Bible Church
22100 SW Grahams Ferry Road
Tualatin, OR 97062

The Concert is free, and a love offering will be taken for Leah's Medical Fund.

We are blown away by the love and support we've received from our community! We just found out that a local choir will be holding a benefit concert for Leah in just a few weeks. They've never even met Leah, but they have been keeping our family in prayer for months just like many of you. And now, they are wanting to help by holding this concert to bless our family and show their support! God is doing such big things in our community through my little girl. As I hold her in my arms and watch her body fighting so hard, it's incredible to think that she is fulfilling her purpose. Even though she's only been out of the house a few times, and mostly to go to the doctor and church, she's touching so many hearts who see the value of life- her life - simply because she's a child of God.

Leah's been doing "ok", which is a word I use very lightly considering the truth is she is still so very sick. We found out last week, on her last blood draw, that her seizure medication levels were running low. This means that they are not at a strong enough levels in her body to be considered therapeutic, and as a result we've recently increased her doses. The most immediate effect has been that Leah's been extra sleepy. It's been great seeing her body at rest from the seizures, and watching her sleep so peacefully for hours at a time. With her sleeping more, we've been able to get a bit more sleep as well.

Each day seems so different from the one before, as Leah doesn't seem to have much ability for routine. But each day is full of love for her, and lots of hugs and kisses from her family! With most of her waking hours spent having seizures, it's hard to have much time to interact with her. So we just love on her, right through one and into the next ones that come on. It's teaching our family a huge lesson in unconditional love. She needs us, and we are caring for her out of our love, irregardless of what she's able to give us in return. She isn't able to do the things a healthy baby could.... the older they get, the more attention they pay to their parents....the milestones that the parents love to brag about to their friends. Yet, what she is able to offer us, is at such a deeper level than any accomplishments. It's at a heart and soul level - knowing that while we are caring for and loving Leah - God is using her to change our hearts. He is changing our priorities, dissolving our fears of "how are we ever going to do this?", and bringing us so closely to His face. He is saying to our hearts, that He created Leah, and He loves Leah, and she is created in His image - and she is valued by Him!

It's very easy as Leah's Mom, to have a deep sense of love for her. However, it's amazing to me to see the love and concern that hundreds of others, and many of you complete strangers, have poured out on behalf of Leah. I guess that's the "special" part of having a Special Needs child. Leah is special, she is different, and her life here with us will most likely be very brief.

I found these quotes on another HPE Mom's website, and I just love them:

"I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter. They see a girl who will not speak, but I see a miracle that does not need words."