We are home this evening (Saturday) preparing to bring Leah home tomorrow. Her seizures have increased rapidly, to the point that they are occuring one after another, after another. They have given her the highest dose that is recommeded safely for her body, and yet the seizures keep coming. Last night it caused her to need breathing assistance and we didn't know if she'd still be with us this morning.
Due to the severity of Leah's condition and the obvious distress that she is under, the staff at the NICU gave our family a private room today and allowed everyone, even Kyla to come be together and visit with Leah this morning. I got to hold her practically all day long, and it was simply wonderful! This is what I've been wanting to do for 8 days now, simply be able to hold and love my little baby girl. She's off all monitors now, and we are leaving her life in God's hands yet another night.
Lord willing, Leah will come home by lunchtime tomorrow, and we will be providing the same level of care at home that she's recieving in the NICU. All meds and feedings will continue as long as she can be with us. Watching her decline over the past 2 days so rapidly has brought us to the place of knowing that the NICU has done everything possible to help our sweet Leah, and there is simply nothing additional that they'd be able to offer her there.
We spent a beautiful day together with all of our family, then Luke and I took turns resting with Leah on our chests....she looked the most peaceful and happy that we'd seen her yet. While she slept she didn't have any seizures, and it was so wonderful to feel her heart beating right next to ours! We read her a bedtime story, took turns giving kisses and wound up her musical lamb.
We don't know what this night will hold, or tomorrow for that matter. But God has already written that part of our story, and we need not be afraid of what we will face. Our God is good, and we are praising Him for a wonderful day with Leah! She is His perfect gift to our family!
Thank you for praying, and continuing to support us. We look forward to having Leah at home with us, and being able to love her for the rest of her life!